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Anyone able to explain to me the meaning of a brain MRI report (details below)?
I'm 40. I have felt that my short-term memory, math/spelling skills, & word recall have been declining more than normal over the past year or so. I also had vertigo. My neurologist referred me for a brain MRI. The initial MRI was then repeated yesterday.
One item came up on the report: 1.5 cm area of enhancement in the left caudate head. I realize that this is not good news, but is there any way of knowing what the greatest possibilities are? Early onset Alzheimer's? Malignant tumor? Benign tumor? MS? Anything else?
I know I should wait to ask my doctor's office, but I won't see him until Tuesday. He thought that nothing would show up, so he hadn't even planned on seeing me again. Now his office is calling me a day after the MRI for an appointment in two business days. That sort of immediacy can't be good.
And, yes, I have tried calling the doctor's office to speak with the doctor for a moment, but I have not gotten a return call yet.
Can you tell I'm anxious? Thanks.
It could be a Space Occupying Lesion (SOL) for short and not to be confused with the more vulgar term for being out of luck.
An area of enhancement could be a tumor and could be something else.
The vertigo you describe, does it usually only occur in the morning?
Now there are tumors and there are TUMORS. Some are slow growing and some are benign. Some only require a watch and wait. Others are more aggressive and require prompt intervention. I was called within 1 hour after the scan !
Our daughter's brain tumor required immediate intervention. We first saw it on a scan and we met the neurologist the next day. She started cortisteroid injections every 4 hours, the same day after the scan to reduce the swelling in her brain. Her tumor was the size of a golf ball when removed. We had medivac scheduled and were flying in three days.
Surgery was exactly 1 week after the scan. In the time between the scan and the surgery, we saw our daughter's symptoms getting progressively worse by the hour after improving when receiving the injections.
An appointment two days after a scan is not as bad as it could be.
My daughter was diagnosed in 1998 when she was 12. It was malgnant. It was grade IV. It was called medulloblastoma / PNET. She had some rough times on treatments that lasted 15 months that included craniospinal irradiation, and a chemo cocktail that would knock her down every 6 weeks.
She is 22 now, something that we doubted possible when we started the voyage. There were many dark and lonely days and nights, but somehow our daughter survived to be a teenager and now to be a young adult. It will be 10 years since the diagnosis in June and she is alive!
If she can face that, what can't you face?
Have you heard about the singer David Bailey? He was diagnosed with Glioblastoma Multiform (GBM - brain tumor) grade IV and given 6 months to live. That was 11 years ago. he's still singing.
Carpe diem. Seize the time you have between now and that appointment. It could be bad; it could be very bad; and it could be that you need another test or two or even a biopsy or might be very benign and not require immediate intervention. I perosnally know people who have lived decades with a brain tumor without treatments, simply on a watch and wait approach (under medical supervision with periodic tests)
With kind and gentle regards,
David Edge
Founder
Yahoo Parental support group Pediatric Brian Tumors and PBT Angels
http://health.groups.yahoo.com/group/Pediatricbraintumors
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